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Hi all!I haven’t used this platform in a while, but let’s say that’s because I’ve been busy! Over the past year I’ve been working on a new company, Rarebase, to help find drugs for people with rare genetic disorders that currently don’t have any options. Belo…
First of all, happy new decade! 🚀🎉🍾With your help and support, I look forward to continue working with a community of innovators to work on difficult but pressing problems together. Thank you all for your support throughout the years. Below are my thoughts on…
I had a blast delivering my TEDx talk in San Francisco. As always there was an amazing audience (including almost 100 volunteers), and it struck me how many people came up to me afterwards to share their personal [medical] story with me. Rare diseases really …
I'm preparing for my upcoming TedX talk in San Francisco. It's an honor to be invited there, and it also forces me to ask myself a lot of questions. What kind of idea do I think is worth spreading? What do I want to leave the audience with? And what is it tha…
Welcome to the first issue of my newsletter! 🚀I’m going to use these moments to share updates about rare disease research, startups and innovation, my passion for turning problems into structural solutions and my personal journey as a patient and entrepreneur…